Become an Advocate

As an Advocate for ALS United Connecticut, you can help change the laws and policies that affect thousands of persons with ALS and their families.

What is Advocacy and why is it important?

An Advocate is someone who publicly supports or recommends a particular cause or policy.

ALS United Connecticut advocates for policies that would improve the lives of those with ALS, their families and caregivers. For over 35 years, ALS CT has been involved in advocacy. The active engagement of people living with ALS and their family members has led to increased federal funding for ALS research, passage of the Medicare waiver for ALS patients, the establishment of presumptive disability recognition from the Social Security Administration, and state legislation in Connecticut.

How You Can Help

Our Advocates are passionate about encouraging government officials at all levels - local, state and national - to improve awareness and resources for people affected by ALS.

Advocates affect real change in the way that our government responds to the needs of the ALS community.

Sharing your connection to ALS in person, over the phone, in an email or a letter can help educate and mobilize our elected officials to take action. Advocates with ALS United Connecticut help change the laws and policies that affect all people with ALS and their families every single year.

Become an ALS advocate today! 

Senator Richard Blumenthal With Jacky Rose Rare Disease Walk 4.27.2024a