As ALS Awareness Month comes to a close, we are filled with immense gratitude and pride for all that we’ve accomplished…together! Throughout May, ALS United CT, as well as our partner organizations, took bold steps to amplify the voices of those living with ALS and those we’ve lost.
One of the most powerful moments this month was when Jacky Rose, our Executive Director, as well as members from ALS United Greater New York and ALS Network, brought ALS Awareness into the national spotlight by ringing the opening bell at the New York Stock Exchange. Our awareness message also felt throughout Connecticut, with features both in newspapers and TV segments, advocating in countless support groups and conferences, a powerful billboard in the heart of New York City, and during 5K road races in the Nutmeg State.
None of this would have been possible without our dedicated community of supporters, advocates, families, and friends. Each action, post, donation, and conversation this month helped bring us one step closer to ending ALS. But just because ALS Awareness Month is concluding, that doesn’t mean we’re stopping. Please help us raise awareness throughout the remainder of 2024 by donating to ALS United CT. Click here to donate.
Below are a few highlights of what happened during ALS Awareness Month:
- ALS United had a billboard in Times Square to raise awareness for ALS. Check out some photos here!
- ALS United CT was at the New York Stock Exchange to ring the opening bell
- ALS United CT joined WTNH-8 and the organizers of Dan the Man to chat about ALS Awareness. Also, Dr. Patwa spoke to Good Morning Connecticut on WTNH-8 to spread awareness
- The Dan the Man 5K Walk/Run raised over $10,000 for ALS United CT
- ALS United, along with several other ALS organizations, joined forces in D.C. to accelerate change and advance the fight against ALS. Read about it here!
- During ALS United Greater New York’s Education and Resource Summit, Tiffany Card, Director of Communications and Advocacy at ALS United Greater New York, and Tony Heyl, Director of Communications and Public Policy at ALS United Mid-Atlantic, spoke about understanding ALS policy and taking action. To view the discussion, click here!
- We posted our 10 Ways to Spread ALS Awareness
- ALS United CT hosted several support groups throughout May, including our “Learn. Talk. Use.” program, where our own Amy Chickles spoke about Awareness. To find out more about our support groups, email careservices@alsunitedct.org.