Advocacy

Understanding CT’s Accessible Voting Procedures

October 31, 2025 Comments Off on Understanding CT’s Accessible Voting Procedures

Every voter deserves the chance to cast their ballot privately, independently, and with dignity. Through the State of Connecticut’s Accessible Voting program, people with disabilities have multiple options to make…

ALS United CT Featured on WTNH 8’s Nyberg!

October 7, 2025 Comments Off on ALS United CT Featured on WTNH 8’s Nyberg!

To start the month of October, ALS United CT was featured on WTNH 8’s segment with Ann Nyberg. Jacky Rose, Executive Director at ALS United CT, along with caregiver Mary…

ALS United Hosts Member Conference

September 1, 2025 Comments Off on ALS United Hosts Member Conference

Earlier this month, Jacky Rose joined volunteer and member leaders from all of the ALS United founding organizations, continuing a legacy of local ALS support. These leaders, many of whom…

ALS United CT Visit Congressman Larson

August 2, 2025 Comments Off on ALS United CT Visit Congressman Larson

A heartfelt thank you to Congressman John Larson and his dedicated team for taking the time to meet with Connecticut constituents Tom and Molly, as well as Jacky Rose and…

Be Prepared for the Heat, Humidity This Summer!

July 9, 2025 Comments Off on Be Prepared for the Heat, Humidity This Summer!

With dangerous heat affecting Connecticut, please take extra precautions these summer months—especially if you or a loved one is living with ALS.  Charge all essential equipment and backup batteries in…

Local Caregiver Featured in AARP Article

July 7, 2025 Comments Off on Local Caregiver Featured in AARP Article

Our local caregiver, Theresa, was recently featured on the AARP website in “Is Someone You Love Living With ALS?”. Theresa’s journey as a full-time care partner began when her husband, Robert,…

Thank you, Berlin Sisters in Quilting

July 3, 2025 Comments Off on Thank you, Berlin Sisters in Quilting

In late June, Paul Bruno, along with Joyce and Len Montanari, visited our office to deliver a generous $2,290 donation. The funds were raised by the Berlin Sisters in Quilting…

A Letter for the ALS United CT Community

June 27, 2025 Comments Off on A Letter for the ALS United CT Community

Below is a letter from Jenna and Lauren detailing their experience with ALS and ALS United CT.  Thanks to you and the entire ALS Community, our local services, research &…

ALS United Rings NYSE Opening Bell to Help Raise Awareness!

May 16, 2025 Comments Off on ALS United Rings NYSE Opening Bell to Help Raise Awareness!

Earlier today, ALS United Connecticut Executive Director Jacky Rose traveled to The Big Apple to help raise ALS Awareness and to start the trading day on Wall Street, joining ALS…

ALS United Featured in Times Square

May 14, 2025 Comments Off on ALS United Featured in Times Square

ALS United Connecticut joined forces with fellow ALS United members to raise powerful ALS awareness right in the heart of the Crossroads to the World—Times Square in New York City!…