Advocacy
ALS United Connecticut proudly announces letters of intent for ALS research funding are now being accepted by ALS Network from April 15 to May 19, 2025. We are honored to…
On February 25, Amy Chickles, Director of Programs at ALS United Connecticut, joined more than 50 members of the rare disease community for Rare Disease Day at the Connecticut State House. Patients, parents,…
ALS research is critical to finding treatments and a cure. ALS United Connecticut joins the healthcare community from across the United States to oppose cuts to research grants at the…
Although the Medicare Advantage Open Enrollment Period is currently underway and ends on March 31, Medicare beneficiaries who want to change Medicare Advantage plans, or switch to traditional Medicare, may…
Applications are now open for The LEITH Lab‘s Possibilities Grant and will be accepted until Saturday, February 15th. The Possibilities Grant Program is designed specifically to provide support for Black or African-American…
When an emergency or natural disaster strikes, it is important for everyone, especially for people living with ALS, to be prepared. It may seem like a lot of work, but…
ALS United Connecticut couldn’t be more excited, as Carol Hamilton, Senior Vice President of Development from ALS TDI joins us for our Ask the Expert webinar on February 20 at…
The most challenging eight months of Brian’s life began when he was just 12 years old and his dad approached him and said those three devastating words: “I have ALS.” When…
Maria, caregiver to her husband Daniel, is on a mission to rally support and raise vital funds, joining forces with ALS United CT in the fight to find a cure…
We were excited to attend the Connecticut Department of Energy & Environmental Protection’s demonstration of its recently purchased All-Terrain wheelchairs on September 23rd. Five State Parks throughout Connecticut (Rocky Neck…