Advocacy

ALS United CT Attends the I AM ALS Summit!

July 3, 2024 Comments Off on ALS United CT Attends the I AM ALS Summit!

Jacky and Amy from ALS United CT traveled to Washington, D.C. from May 30-31 to participate in the inaugural I AM ALS Community Summit with advocates from across the country. They were…

“Living with ALS” Report Released by National Academy of Sciences

June 19, 2024 Comments Off on “Living with ALS” Report Released by National Academy of Sciences

A congressionally mandated report from the National Academies of Sciences, Engineering, and Medicine recommends various actions that Congress, federal agencies, insurers, medical providers and non-profits can take to strengthen health…

ALS United CT Joins Yard Goats for Lou Gehrig Day!

June 7, 2024 Comments Off on ALS United CT Joins Yard Goats for Lou Gehrig Day!

It was such an amazing day at Dunkin’ Park on Sunday! It was a picture-perfect day to honor the Iron Horse on Lou Gehrig Day and celebrate all the heroes…

A Busy May at ALS United CT!

June 1, 2024 Comments Off on A Busy May at ALS United CT!

ALS United Connecticut staff has been active for the past several months, promoting important issues in the state. Executive Director Jacky Rose and Director of Programs Amy Chickles represented ALS…

AMP ALS: United in the Fight Against ALS

May 22, 2024 Comments Off on AMP ALS: United in the Fight Against ALS

ALS United, along with its dedicated members, has taken a significant step in the battle against Amyotrophic Lateral Sclerosis (ALS) by collectively supporting the Accelerating Medicines Partnership (AMP) ALS initiative.…

ALS United Joins WTNH’s Morning Buzz

May 17, 2024 Comments Off on ALS United Joins WTNH’s Morning Buzz

ALS United Connecticut’s Jacky Rose recently joined WTNH’s Morning Buzz to talk ALS Awareness and the Dan the Man 5k ALS Walk/Run. Ava and Lisa joined Jacky to talk about…

Research Update with Dr. Bedlack

May 6, 2024 Comments Off on Research Update with Dr. Bedlack

ALS United North Carolina recently interviewed Connecticut native Dr. Richard Bedlack, a Professor of Neurology at Duke University and Director of the Duke ALS Clinic. Dr. Bedlack grew up in…

Advocate in May!

May 1, 2024 Comments Off on Advocate in May!

May is recognized as ALS Awareness Month across the country. Advocacy and awareness opportunities are available year-round, but May is a good time to educate friends, your community, and your…

ALS United CT Joins together with other ALS organizations to advocate for FY25 funding priorities to Congress

March 7, 2024 Comments Off on ALS United CT Joins together with other ALS organizations to advocate for FY25 funding priorities to Congress

The Honorable Patty MurrayChairSenate Committee on AppropriationsS-128 The CapitolWashington, DC 20510 The Honorable Kay GrangerChairHouse Committee on AppropriationsH-307 The CapitolWashington, DC 20515 The Honorable Susan CollinsVice ChairSenate Committee on AppropriationsS-128…