Press Releases

Robert Packard Center for ALS Research and ALS United Announce Joint Research Funding Partnership 

October 28, 2025 Comments Off on Robert Packard Center for ALS Research and ALS United Announce Joint Research Funding Partnership 

The Robert Packard Center for ALS Research at Johns Hopkins and ALS United are pleased to announce a collaboration to jointly fund preclinical basic science research into amyotrophic lateral sclerosis…

Jack Mac Scramble Raises Nearly $56K for ALS United CT!

October 17, 2025 Comments Off on Jack Mac Scramble Raises Nearly $56K for ALS United CT!

The fourth annual Jack Mac Scramble for ALS charity golf tournament took place on September 15th at the Fairview Farm Golf Course in Harwinton, CT and raised $55,940 for ALS United CT.…

Don’t Miss This Special Video Featuring ALS United CT

September 2, 2025 Comments Off on Don’t Miss This Special Video Featuring ALS United CT

We invite you to watch this special video featuring ALS patients and caregivers, shining a light on the incredible services and support ALS United Connecticut provides. We are so grateful…

ALS United CT Welcomes Jewell Auguste!

August 29, 2025 Comments Off on ALS United CT Welcomes Jewell Auguste!

ALS United CT is proud to introduce Jewell Auguste to the staff as our third Care Services Manager! Jewell has always had a heart for helping others, and she’s especially…

ALS United CT’s Jacky Rose Named to Hartford Business Journal’s 40 Under Forty

August 11, 2025 Comments Off on ALS United CT’s Jacky Rose Named to Hartford Business Journal’s 40 Under Forty

ALS United Connecticut proudly announces that Executive Director Jacky Rose has been named one of the Hartford Business Journal’s 2025 40 Under Forty honorees. Presented by the Hoffman Auto Group,…

Apply Now for Segalman Family Scholarship

June 6, 2025 Comments Off on Apply Now for Segalman Family Scholarship

Scholarship alert! The Paula Kovarick Segalman Family Scholarship for ALS is a renewable scholarship for up to $5,000 for students who maintain a minimum 2.5 GPA on a 4.0 scale (or equivalent). It…

Navigating Communicaion Challenges After an ALS Diagnosis

May 1, 2025 Comments Off on Navigating Communicaion Challenges After an ALS Diagnosis

May is National Speech-Language-Hearing Month! In recognition of this month, I wanted to highlight the role that Speech-Language Pathologists (SLP) play in managing the communication challenges that accompany an ALS…

Request for Letters of Intent Now Open

April 16, 2025 Comments Off on Request for Letters of Intent Now Open

ALS United Connecticut proudly announces letters of intent for ALS research funding are now being accepted by ALS Network from April 15 to May 19, 2025. We are honored to…

Show Your Support for ALS United Connecticut

March 14, 2025 Comments Off on Show Your Support for ALS United Connecticut

The winter chill in the air is slowly leaving the area and is making way for the upcoming spring weather! What better way to gear up for the warmer days…

Explore Connecticut with ALS United CT On Wheels

March 5, 2025 Comments Off on Explore Connecticut with ALS United CT On Wheels

Thanks to a suggestion from someone in our community living with ALS, we’ve set a goal this year to highlight accessible locations throughout Connecticut. We plan to feature these places…