Press Releases

“Living with ALS” Report Released by National Academy of Sciences

June 19, 2024 Comments Off on “Living with ALS” Report Released by National Academy of Sciences

A congressionally mandated report from the National Academies of Sciences, Engineering, and Medicine recommends various actions that Congress, federal agencies, insurers, medical providers and non-profits can take to strengthen health…

Brian Savo/ALS United CT Highlighted on WFSB 3 News

May 3, 2024 Comments Off on Brian Savo/ALS United CT Highlighted on WFSB 3 News

In a lead-up to the Denise D’Ascenzo Foundation’s Walk to Fight Rare Diseases, which took place on Saturday, April 27th, ALS United CT Board member Brian Savo was featured in…

Amylyx Pharmaceuticals Announces Topline Results From Global Phase 3 PHOENIX Trial of AMX0035 in ALS

March 12, 2024 Comments Off on Amylyx Pharmaceuticals Announces Topline Results From Global Phase 3 PHOENIX Trial of AMX0035 in ALS

We are sad to share that the results from Amylyx Pharmaceutical’s top line data of their phase 3 clinical trial indicates that treatment with Relyvrio showed no better results than…

ALS United Connecticut Applauds Long-Awaited Victory for ALS Community as CMS Implements Groundbreaking Prior Authorization Reforms

January 25, 2024 Comments Off on ALS United Connecticut Applauds Long-Awaited Victory for ALS Community as CMS Implements Groundbreaking Prior Authorization Reforms

January 2024 The Centers for Medicare and Medicaid Services (CMS) have unveiled a final rule that marks a decisive stance against hindering essential medical care through the misuse of prior…