Research

ALS United CT Opposes Cuts to Research Grants at the NIH

February 20, 2025 Comments Off on ALS United CT Opposes Cuts to Research Grants at the NIH

ALS research is critical to finding treatments and a cure. ALS United Connecticut joins the healthcare community from across the United States to oppose cuts to research grants at the…

Our Next “Ask The Expert” to Take Place Feb. 20

February 3, 2025 Comments Off on Our Next “Ask The Expert” to Take Place Feb. 20

ALS United Connecticut couldn’t be more excited, as Carol Hamilton, Senior Vice President of Development from ALS TDI joins us for our Ask the Expert webinar on February 20 at…

ALS United CT Joins Nine Member Organizations to Accelerate Urgent Search to Cure ALS

December 18, 2024 Comments Off on ALS United CT Joins Nine Member Organizations to Accelerate Urgent Search to Cure ALS

ALS United Connecticut is proud to be part of an unprecedented collaboration with nine other ALS organizations through ALS United and the ALS Network. The participating organizations include ALS Network…

CT DEEP Adds All-Terrain Wheelchairs to State Parks

September 25, 2024 Comments Off on CT DEEP Adds All-Terrain Wheelchairs to State Parks

We were excited to attend the Connecticut Department of Energy & Environmental Protection’s demonstration of its recently purchased All-Terrain wheelchairs on September 23rd. Five State Parks throughout Connecticut (Rocky Neck…

Participants Needed: ALS Caregivers

September 6, 2024 Comments Off on Participants Needed: ALS Caregivers

Dr. Chelsey Carter and her team at the LEITH Lab at the Yale School of Public Health are looking for current caregivers of those impacted by ALS and persons living…

ALS United CT Recognizes 10th Anniversary of the Ice Bucket Challenge

August 3, 2024 Comments Off on ALS United CT Recognizes 10th Anniversary of the Ice Bucket Challenge

Staff from ALS United CT and board member Judd McArthur were at Milford’s Lou Gehrig Field to recognize the 10-year anniversary of the Ice Bucket Challenge. Lou Gehrig’s mother lived…

ALS United CT Attends the I AM ALS Summit!

July 3, 2024 Comments Off on ALS United CT Attends the I AM ALS Summit!

Jacky and Amy from ALS United CT traveled to Washington, D.C. from May 30-31 to participate in the inaugural I AM ALS Community Summit with advocates from across the country. They were…

“Living with ALS” Report Released by National Academy of Sciences

June 19, 2024 Comments Off on “Living with ALS” Report Released by National Academy of Sciences

A congressionally mandated report from the National Academies of Sciences, Engineering, and Medicine recommends various actions that Congress, federal agencies, insurers, medical providers and non-profits can take to strengthen health…

AMP ALS: United in the Fight Against ALS

May 22, 2024 Comments Off on AMP ALS: United in the Fight Against ALS

ALS United, along with its dedicated members, has taken a significant step in the battle against Amyotrophic Lateral Sclerosis (ALS) by collectively supporting the Accelerating Medicines Partnership (AMP) ALS initiative.…

Research Update with Dr. Bedlack

May 6, 2024 Comments Off on Research Update with Dr. Bedlack

ALS United North Carolina recently interviewed Connecticut native Dr. Richard Bedlack, a Professor of Neurology at Duke University and Director of the Duke ALS Clinic. Dr. Bedlack grew up in…