Research

ALS United CT Attends the I AM ALS Summit!

July 3, 2024 Comments Off on ALS United CT Attends the I AM ALS Summit!

Jacky and Amy from ALS United CT traveled to Washington, D.C. from May 30-31 to participate in the inaugural I AM ALS Community Summit with advocates from across the country. They were…

“Living with ALS” Report Released by National Academy of Sciences

June 19, 2024 Comments Off on “Living with ALS” Report Released by National Academy of Sciences

A congressionally mandated report from the National Academies of Sciences, Engineering, and Medicine recommends various actions that Congress, federal agencies, insurers, medical providers and non-profits can take to strengthen health…

AMP ALS: United in the Fight Against ALS

May 22, 2024 Comments Off on AMP ALS: United in the Fight Against ALS

ALS United, along with its dedicated members, has taken a significant step in the battle against Amyotrophic Lateral Sclerosis (ALS) by collectively supporting the Accelerating Medicines Partnership (AMP) ALS initiative.…

Research Update with Dr. Bedlack

May 6, 2024 Comments Off on Research Update with Dr. Bedlack

ALS United North Carolina recently interviewed Connecticut native Dr. Richard Bedlack, a Professor of Neurology at Duke University and Director of the Duke ALS Clinic. Dr. Bedlack grew up in…

Amylyx Pharmaceuticals Announces Topline Results From Global Phase 3 PHOENIX Trial of AMX0035 in ALS

March 12, 2024 Comments Off on Amylyx Pharmaceuticals Announces Topline Results From Global Phase 3 PHOENIX Trial of AMX0035 in ALS

We are sad to share that the results from Amylyx Pharmaceutical’s top line data of their phase 3 clinical trial indicates that treatment with Relyvrio showed no better results than…

NurOwn AdComm Comments due 9/20!

December 19, 2022 Comments Off on NurOwn AdComm Comments due 9/20!

The FDA’s Cellular, Tissue, and Gene Therapies Advisory Committee meets on Sept. 27 in open session to discuss and make recommendations on a biologics license application from BrainStorm Therapeutics, Inc.…