Research
We were excited to attend the Connecticut Department of Energy & Environmental Protection’s demonstration of its recently purchased All-Terrain wheelchairs on September 23rd. Five State Parks throughout Connecticut (Rocky Neck…
Dr. Chelsey Carter and her team at the LEITH Lab at the Yale School of Public Health are looking for current caregivers of those impacted by ALS and persons living…
Staff from ALS United CT and board member Judd McArthur were at Milford’s Lou Gehrig Field to recognize the 10-year anniversary of the Ice Bucket Challenge. Lou Gehrig’s mother lived…
Jacky and Amy from ALS United CT traveled to Washington, D.C. from May 30-31 to participate in the inaugural I AM ALS Community Summit with advocates from across the country. They were…
A congressionally mandated report from the National Academies of Sciences, Engineering, and Medicine recommends various actions that Congress, federal agencies, insurers, medical providers and non-profits can take to strengthen health…
ALS United, along with its dedicated members, has taken a significant step in the battle against Amyotrophic Lateral Sclerosis (ALS) by collectively supporting the Accelerating Medicines Partnership (AMP) ALS initiative.…
ALS United North Carolina recently interviewed Connecticut native Dr. Richard Bedlack, a Professor of Neurology at Duke University and Director of the Duke ALS Clinic. Dr. Bedlack grew up in…
Amylyx Pharmaceuticals Announces Topline Results From Global Phase 3 PHOENIX Trial of AMX0035 in ALS
We are sad to share that the results from Amylyx Pharmaceutical’s top line data of their phase 3 clinical trial indicates that treatment with Relyvrio showed no better results than…
The FDA’s Cellular, Tissue, and Gene Therapies Advisory Committee meets on Sept. 27 in open session to discuss and make recommendations on a biologics license application from BrainStorm Therapeutics, Inc.…