Research

Robert Packard Center for ALS Research and ALS United Announce Joint Research Funding Partnership 

October 28, 2025 Comments Off on Robert Packard Center for ALS Research and ALS United Announce Joint Research Funding Partnership 

The Robert Packard Center for ALS Research at Johns Hopkins and ALS United are pleased to announce a collaboration to jointly fund preclinical basic science research into amyotrophic lateral sclerosis…

Help All ALS Transform the Landscape of ALS Research

September 4, 2025 Comments Off on Help All ALS Transform the Landscape of ALS Research

Whether you’re a patient, caregiver, or family member, your involvement can help shape the future of ALS research. The ALL ALS Consortium is committed to being ALL IN for ALS research.  By joining…

ALS Organizations Join Forces in D.C. to Accelerate Change and Advance the Fight Against ALS

May 1, 2025 Comments Off on ALS Organizations Join Forces in D.C. to Accelerate Change and Advance the Fight Against ALS

This week, several leading ALS organizations came together in Washington, D.C. to expedite solutions to advance the fight against ALS in the current policy environment. We have committed to leverage…

Navigating Communicaion Challenges After an ALS Diagnosis

May 1, 2025 Comments Off on Navigating Communicaion Challenges After an ALS Diagnosis

May is National Speech-Language-Hearing Month! In recognition of this month, I wanted to highlight the role that Speech-Language Pathologists (SLP) play in managing the communication challenges that accompany an ALS…

Request for Letters of Intent Now Open

April 16, 2025 Comments Off on Request for Letters of Intent Now Open

ALS United Connecticut proudly announces letters of intent for ALS research funding are now being accepted by ALS Network from April 15 to May 19, 2025. We are honored to…

ALS United CT Opposes Cuts to Research Grants at the NIH

February 20, 2025 Comments Off on ALS United CT Opposes Cuts to Research Grants at the NIH

ALS research is critical to finding treatments and a cure. ALS United Connecticut joins the healthcare community from across the United States to oppose cuts to research grants at the…

Our Next “Ask The Expert” to Take Place Feb. 20

February 3, 2025 Comments Off on Our Next “Ask The Expert” to Take Place Feb. 20

ALS United Connecticut couldn’t be more excited, as Carol Hamilton, Senior Vice President of Development from ALS TDI joins us for our Ask the Expert webinar on February 20 at…

ALS United CT Joins Nine Member Organizations to Accelerate Urgent Search to Cure ALS

December 18, 2024 Comments Off on ALS United CT Joins Nine Member Organizations to Accelerate Urgent Search to Cure ALS

ALS United Connecticut is proud to be part of an unprecedented collaboration with nine other ALS organizations through ALS United and the ALS Network. The participating organizations include ALS Network…

CT DEEP Adds All-Terrain Wheelchairs to State Parks

September 25, 2024 Comments Off on CT DEEP Adds All-Terrain Wheelchairs to State Parks

We were excited to attend the Connecticut Department of Energy & Environmental Protection’s demonstration of its recently purchased All-Terrain wheelchairs on September 23rd. Five State Parks throughout Connecticut (Rocky Neck…

Participants Needed: ALS Caregivers

September 6, 2024 Comments Off on Participants Needed: ALS Caregivers

Dr. Chelsey Carter and her team at the LEITH Lab at the Yale School of Public Health are looking for current caregivers of those impacted by ALS and persons living…